Sharing our Canadian experience with PROMs at the 2013 National PROMs Summit in London, England
The Second National PROMs Summit focusing on the Development of PROMs in Clinical Practice at a Local Level was held on November 14th, 2013 in London, England. The conference was attended by Angie Chan, Project Manager, on behalf of the VALHUE study team, whose presentation garnered interest among the mostly UK-based attendees. Read more
Reflections on the 2013 Canadian Association for Health Services and Policy Research conference
The Canadian Association for Health Services and Policy Research held their annual conference in Vancouver from May 28 to 31, 2013. The conference was well attended by the Health Care Funding team, and we gave a presentation about our evaluation of the effects of introducing activity-based funding in BC and a poster about linking costs of care across different parts of the health system. Read more
Measuring the Patient’s View of the Queue: Challenges and Strategies for Collecting Patient Reported Outcomes Data for Waitlisted Surgical Patients
Vancouver Coastal Health, in collaboration with the University of British Columbia, is collecting Patient Reported Outcomes (PROs) to quantify the effects of waiting for surgical care. General and condition-specific health status, pain, and depression are being measured at three points during the patient’s episode of care: 1) upon registration to a surgical wait list, 2) prior to surgery, and 3) post-recovery. These repeated measurements allow us to evaluate the impact of wait time on the patient’s health while they wait for surgery and after treatment. Read more
Learn more about PROMs
The VALHUE study team will be showing off our research at the Canadian Association for Health Services and Policy Research‘s (CAHSPR) annual conference in Vancouver on May 28 – 31, 2013. Our poster presentation is about selecting a generic health status instrument for the systematic collection of patient-reported outcomes and our oral presentation will focus on lessons from the collection of patient-reported outcomes and knowledge translation exercises. Read more
Measuring health related quality of life
Measuring the health-related quality-of-life (HRQoL) of a population is a concept that has been around since the late 1940s. This is when the World Health Organization proposed that health be measured, not simply by the absence of disease, but by the quality of one’s life. This is great in theory, but the reality is that quality-of-life can be a difficult thing to quantify. How do we measure gains or losses in HRQoL? Read more
RESIO
The RESIO study was undertaken to test the feasibility of collecting PROMs on a routine basis. From November 1999 to September 2000, 5,313 consecutive patients having cataract replacement surgery, cholecystectomy, hysterectomy, lumbar discectomy, prostatectomy, or total hip replacement completed a pre- and post-surgery survey of their health related quality of life (HRQOL). Wright CJ, Chambers […]
Welcome to the PROMs Community
Patient-centred care seems like such a hot topic right now. There is an enormous effort right now to quantify health care from the patient’s point of view. One thing that’s become clear is the growing need for reliable, high quality information. By this I mean information beyond the conceptual, the theoretical, and the buzzwords. The kind of information you can really only get from the firsthand experiences of those that are on the frontline putting this into practice. That’s the kind of experience we hope to deliver with this blog. Welcome to the Patient Reported Outcomes blog. Read more
VALHUE
There is little understanding of whether shorter wait times are associated with better clinical outcomes, and whether policy-linked initiatives to increase access to surgery are associated with consistent changes in health improvement. The literature regarding the effect of wait times on health is significantly under-developed. VALHUE aims to address this gap in the literature.